Tennessee, USA
When were you diagnosed with MS? January 2018
What type of MS do you have? Primary-Progressive MS (PPMS)
#1: Can you tell us a little about your journey with MS. How did you feel about your initial diagnosis and how it has affected your life?
When I was told of my diagnosis, I was kinda numb at first. I just sat there listening to the doctor afterward. When I got to my car, I just sat there not knowing what to do or what to think. I was shocked, but, also relieved that after several doctor visits, medications, and numerous tests, I finally had an answer to what was happening to me.
#2: What MS symptoms do you have and how do you manage them on a daily basis?
I experience trigeminal neuralgia alongside my MS, which primarily affects the right side of my body. This includes facial numbness, tingling in my right eye, as well as numbness and tingling in my arm and hands. At night, I often experience muscle spasms and weakness in my legs. Like many others, I also struggle with fatigue and have difficulty tolerating heat. To manage these symptoms, I prioritize rest and take my MS medication and muscle relaxers. Additionally, I use portable fans in my house and car, and I wear cooling hats and scarves. Especially during the summer, to help alleviate the effects of heat and my sensitivity to it.
#3: Who/What has been your most important support system?
Since day one, my family has been my greatest support system, always there for me and supporting me. During my consultation with the neurologist after my diagnosis, it wasn't just my husband and me present. There were eight other close family members in the room, and one more on speakerphone, all eager to comprehend what i needed to help combat this disease. They have truly been my village and the driving force behind my keeping me going and staying positive.
#4: Do you use any accessories like canes, walkers, or wheelchairs to manage daily activities?
I don’t use any canes, walkers, or wheelchairs. But when I'm working I use an up desk, so that I can stand some to keep from being so stiff from sitting all day.
#5: How do you stay positive and motivated in your daily life? What do you do for self-care?
I've always had a positive outlook on life and strive to inspire and motivate my family and friends. To achieve overall well-being, I dedicate time to reading and nurturing my physical, mental, and spiritual health. I also engage in regular walks and exercise, pedicures and massages, and prioritize hair and skin care. I firmly believe when you look good you feel good inside and out.
#6: Your story and experiences with MS are incredibly valuable and can provide encouragement and motivation to others in the community. What words of advice or encouragement would you give to someone who is newly diagnosed with MS or going through a challenging time right now?
I would say to others that you can live a full life with MS with a positive mindset. Make sure you are taking care of yourself and putting yourself first in your MS journey. Rely on your family and friends when needed and just enjoy life, even if you have limitations you can always do a modified version of whatever you want too. Don’t limit your dreams soar instead.
#7: Have you started a business or mission related to MS? Can you tell us about it and what inspired you to take this step?
Although I don't have a specific mission or business, I make it a point to raise awareness about Multiple Sclerosis.
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