When were you diagnosed with MS? November 2012
What type of MS do you have? Relapsing-Remitting MS (RRMS)
#1: Can you tell us a little about your journey with MS. How did you feel about your initial diagnosis and how it has affected your life?
My journey began with numbness in my both legs and it moved into numerous areas of my body. I was prescribed steroids which helped my issues. I was also given numerous medications such as Tysabri. I could only take it though for 2 years; because I have the JC virus antibodies. It wasn’t until 2015, I found out I had several lesions on my spine. Unfortunately, I developed another chronic illness. I was also diagnosed with bipolar 2 disorder in May 2017. It's had such a devastating impact on my life; but, with the support from my husband and taking medication, I’ve been able to live a healthy and thriving life. I’m now taking Ocrevus infusions and thankfully, I no longer have any new lesions.
#2: What MS symptoms do you have and how do you manage them on a daily basis?
I take 2 types of pain medication baclofen and gabapentin 3 times a day. I try to do physical therapy exercises 2-3 times a week.
#3: Who/What has been your most important support system?
The love of my husband and family members such as...my parents, brothers, and my foster sister have always been there for me. The MS community on Instagram has really helped me too. So that I don’t feel alone. I am eternally grateful for all of the caringness and encouragement that many fellow MS warriors have given me.
#4: Do you use any accessories like canes, walkers, or wheelchairs to manage daily activities?
I occasionally, use a wheelchair when I’m in large areas such as Costco, flea markets.
#5: How do you stay positive and motivated in your daily life? What do you do for self-care?
I try to get plenty of sleep. I take naps and rest from social media for a bit daily. I love reading graphic novels.
#6: Your story and experiences with MS are incredibly valuable and can provide encouragement and motivation to others in the community. What words of advice or encouragement would you give to someone who is newly diagnosed with MS or going through a challenging time right now?
Just know that you are not alone! There are so many supportive and caring individuals out there for you. Such as the MS society, The New Face of MS, Shift MS, and a number of websites too. Most importantly, therapy is so helpful for your mental health too.
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